Acoustic Neuroma
Outlookfor acoustic neuromas
Source: NHS
In this topic (5)
Large acoustic neuromas can be serious because they can sometimes causea life-threatening build-up of fluid in the brain (hydrocephalus).
However, it's rare for them to reach this stage. Many grow very slowly or not at all,andthose thatgrow more quickly can be treated before they become too big.
Even with treatment,symptoms such as hearing loss and tinnitus can persist and affectyourability to work, communicate and/or drive. These problems may need additional treatment read more about treating hearing lossand treating tinnitus.
An acoustic neuroma canoccasionally return after treatment. This is thought to happento around 1 in every 20 people who have had surgical removal.
You will probably continue havingregular MRI scans after any treatment, to checkifthe tumour is growing againor coming back.
Information about you
If you have an acoustic neuroma, your clinical team will pass information about you on to the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS).
This helps scientists look for better ways to prevent and treat this condition. You can opt out of the register at any time.
Find out more about the register.
The 100,000 Genomes Project
If your doctor thinks there could be a genetic cause for your acoustic neuroma, you may be invited to take part in the 100,000 Genomes Project.
Your DNA will be studied to find out more about the cause of your condition. The aim is to create a new personalised medicine service for the NHS. This should transform the way people are cared for.
